Facing the Cognitive Challenges of Multiple Sclerosis

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Aug 05, Debra rated it it was amazing. Excellent read. Good description of what it's like to experience MS especially cognitive difficulties. This is the best MS book I have read thus far!! His practical experience coupled with excellent advice is perfect.

If you have MS or love someone with MS read this book!! Aug 13, Samantha O'neill-edgar rated it liked it. It was good to hear another perspective. It is good to know that I'm not alone in my fears or challenges. It got a bit preachy and glossed over some of the hardships that the writer went through.

It maybe he didn't feel the same fear I do it he didnt want to scare MSers. All in all it was a good read.


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Jun 05, Eric added it. A must-read for anyone with a friend or relative with MS. Heike rated it really liked it Sep 17, Jamie rated it really liked it Nov 23, Laura rated it liked it Feb 15, Cathy Miller rated it really liked it Oct 15, Annette Kelley rated it it was amazing Oct 12, Kathryn rated it liked it May 21, Beth Chapman rated it it was amazing Jul 27, Tessniem Alhafidh rated it it was amazing Feb 04, Michelle rated it it was amazing Apr 19, Jordan Dossett rated it it was amazing Jul 02, Tricia rated it it was amazing Jul 17, Jenni rated it it was amazing Oct 14, Sarah rated it it was amazing May 16, This was a truly informative book.

Rachel Hilton rated it liked it Mar 02, Carla rated it really liked it Oct 17, Ron rated it it was amazing Jul 24, George rated it really liked it Mar 20, Poetic rated it liked it Apr 26, There are no discussion topics on this book yet. Readers also enjoyed. About Jeffrey N. Jeffrey N.

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Gingold is an internationally acclaimed and award-winning author, and published freelance writer. Jeffrey has been interviewed on national television, public radio shows, in magazines, and numerous global publications. Jeffrey donates percent of Jeffrey N. Missing any of the four steps of "working memory", paying attention, learning information, retrieving information, and putting information into action affect cognitive functioning. Symptoms can include:.

Other cognitive problems can include "cognitive fatigue," especially doing a series of calculations, "emotional disturbance" such as depression, euphoria, bi-polar disorder and pathological laughing or crying, and "Pseudobulbar affect disorder," related to the ability to regulate emotions.

Cognitive functioning can also be affected by fatigue, depression and side effects of medications. There are a number of tests to measure cognitive function.

Cognitive Changes - MS platforma Srbija

Test results are used by neuropsychologists, psychologists, speech-language and occupational therapists, and counselors to develop an individualized cognitive rehabilitation program. Gingold suggests four goals for living with MS. All Rights Reserved. Donate Now. Search this site. Other participants shared their experiences of disclosing their MS and the difficulties it caused them in the workplace. There was sentiment that some employers may take an initial accommodation request as a sign that the worker could not complete essential job tasks.

Participants knew their rights to accommodation under the ADA, but still worried that employers may not always act in good faith in offering accommodations if a person with MS was not ready to advocate for his or her needs. These feelings were summarized by one individual who stated the following:. Not everybody gets those large monitors. In a particular example, a participant gave up an exciting work opportunity because of an inaccessible work environment:.

Introduction

I was at a job once at [a luxury car dealership], and they got a new site I tried. Concerns raised about disclosure of MS and the availability of on-the-job accommodations are consistent with findings reported by Rumrill et al. The majority of respondents in that study reported dissatisfaction with their knowledge regarding their rights and responsibilities related to disclosure of disability status under the ADA.

Facing the Cognitive Challenges of Multiple Sclerosis

The brochure advocates a collaborative, non-adversarial dialogue between the employee with MS and his or her employer as the best way to proactively solve potential on-thejob problems and avoid costly and counterproductive litigation. Learning to Cope.

Cognitive Changes

Though many participants shared trepidation about asking for accommodations, others noted that accommodations were quite useful in helping them to cope with MS in the workplace. Accommodations that enabled a person to telecommute were particularly valued by many individuals, since telecommuting provided the flexibility to manage MS symptoms while remaining actively engaged in productive work.

Since MS symptom acuity can be variable from day-today for many people, the ability to work from home, even just on days when symptoms flared, was enough to enable a person to remain employed. The importance of such flexibility was summarized by one person who shared her work arrangements:. Customizing a job that fits the ability of people within the course of their MS was also a popular route to navigating the workplace while coping with MS.

Although there are numerous ways to customize job duties, participants in this study shared a couple of excellent examples that assisted them in maintaining employment as their MS progressed. In another example, a journalist shared how his duties shifted along with his illness, enabling him to remain in his career:. I was a journalist and so I worked in TV, and radio and newspapers, and the best was being able to get out and find the story For other participants, learning to navigate the workplace with MS was less formal, not requiring elaborate accommodations but simpler modifications of their work habits.

For instance, a number of people who experienced short-term memory challenges explained that they used functions on their smartphones to record notes to themselves. Others simply took a pad of paper with them at all times so that they could write notes about things they needed to do. In addition, several participants credited connections with national organizations, particularly the NMSS and its local chapters, with helping them to gain insights and strategies for coping with MS at work.

Benefits Eligibility. Another important part of navigating the workplace for people with MS was balancing work with the need for public benefits. In some cases, this led people to cut back their work hours in order to maintain their benefits, including one individual who wanted to keep working but was forced to cut back:. When I go back, I will be working 20 a week. In order to have Social Security Disability, 1 have to only make a thousand a month so I had to switch because of that. Maintaining SSDI and Medicare was so important that some people made major lifestyle changes to protect those benefits.

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Deciding that the healthcare benefits afforded under Medicare outweighed the benefits of higher earnings, one focus group participant explained:. So with some rearranging and stuff, I get by. These examples illustrate the major life compromises that people with MS are forced to make in order to balance their healthcare needs with other aspects of their lives Kalb, ; Fraser et al. Often, participants in this study noted that their need for good health supports outweighed their career goals, requiring them to make significant sacrifices in their careers in order to secure adequate health insurance.

This study provides a perspective on working with MS, informed directly by individuals living with the disease, whether they were employed or unemployed. Although the study is constrained by the limitations inherent in qualitative research most notably lack of generalizability beyond the sample , the findings give voice to the employment experiences of individuals with MS in ways that have not previously been found in the literature.

In addition, the findings are consistent with previous empirical evidence on employment of individuals with MS. Participants in this study discussed the negative impact that the unpredictability of MS has on employment.

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Cognitive Functioning and Multiple Sclerosis

In addition, existing research supports the phenomenon observed in this study whereby people with MS reduced their work hours or took jobs below their training and experience. Participants also expressed concern about navigating the workplace, including disclosing their disability and asking for accommodations.

One of the goals of this research was to provide information on the employment experiences of individuals with MS that can be used by rehabilitation professionals. Knowledge of these concerns can assist them in providing supports and services to individuals facing unique challenges in maintaining employment or returning to the workplace after a diagnosis of MS.


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  • For instance, a job seeker with MS may need assistance in developing self-advocacy skills in order to represent his or her accommodation needs to employers including what and how to disclose to employers and coworkers. In addition, information on the types of workplace accommodations used by workers with MS may empower newly diagnosed individuals to ask for accommodations that will assist them in maintaining employment. The other sub-themes identified in this research are also areas in which people with MS need information and support services.

    A number of the focus group participants expressed concerns about working for fear of losing SSDI and health care benefits. Although this study did not identify what these individuals already know about benefits planning and Social Security work incentives, it does appear to indicate that information is needed in this area to address some of these concerns. Individuals in these focus groups also expressed concerns related to future uncertainty and a sense of loss related to the impact that MS had on their careers and employment opportunities.

    This included lower self-confidence in their abilities. Having access to information on how to manage the disease and successful case studies of people working with MS appears to be needed.